February 13, 2015
Texas is the first jurisdiction in North America to introduce legislation that would make pre-participation ECG screening mandatory for student athletes. PACED will be monitoring the progress of this bill with great interest over the coming months. Reports from volunteer screening initiatives from the UK and USA report finding 1% or more of young people tested are positive for a heart condition that could result in sudden cardiac arrest.
February 5, 2015
Fascinating research into inherited heart arrhythmia diseases using gaming technology and supercomputers.
In a world obsessed with due diligence little is being done to protect young athletes. Here are two stories from half a world apart of young athletes dying, both deaths easily preventable.
Oklahoma has joined the growing list of states that have Sudden Cardiac Arrest Prevention Legislation in the pipeline.
January 19, 2015
Thanks to State Senator Rosemary McAuliffe, Washington has joined the growing list of states that has legislation pending or passed that is designed to protect youth from sudden cardiac arrest. The goal is to educate coaches and educators to the warning signs of heart arrhythmia and identify at-risk kids before they experience cardiac arrest.
January 14, 2015
An ARVD patient from Michigan goes home with an artificial heart. The compressor that runs his artificial heart is carried in a backpack.
January 12, 2015
Researchers now better understand the proteins that hold the key to heart muscle development. This could lead to improved screening and treatment for cardiomyopathy patients.
December 28, 2014
Jianmin Cui and his team in St. Louis are finding important answers to how ion channels work opening the door for the development of targeted drugs. This has huge potential for Long QT Syndrome patients and their families. http://www.dddmag.com/news/2014/12/opportunities-develop-targeted-drug-therapy-cardiac-arrhythmia
December 18, 2014
An important announcement for Canadian Families living with an arrhythmia disease. The Canadian Arrhythmia Network (CAN net) with $26.3 million in funding will make its home at University of Western Ontario’s Schulich School of Medicine and Dentistry. Clinicians and scientists will be looking to better understand and treat heart rhythm disorders. http://www.thelondoner.ca/2014/12/17/canadian-arrhythmia-network-established-at-western
December 13, 2014
The European Symposium on preventing Sudden Cardiac Arrest in Sports wrapped up this week. Studies showing the effectiveness of ECG screening were presented. Scientists also relaxed their stance on participating in sport with an Implantable Cardioverter Defibrillator – ICD http://www.news-medical.net/news/20141211/Reducing-the-risk-of-sudden-cardiac-arrest-during-sports.aspx
December 12, 2014
Dr. Victoria Vetter of Children’s Hospital in Philadelphia weighs in on the ECG screening debate. Dr. Vetter believes that Sudden Cardiac Arrest in youth is often preventable and Screening is the key to identifying at-risk children and youth. She ups the ante suggesting all kids should have two or three ECG’s by the time leave high school. PACED could not agree more. http://www.prnewswire.com/news-releases/screen-all-infants-children-and-teens-to-help-prevent-sudden-cardiac-death-says-chop-cardiology-expert-280825702.html
December 11, 2014
Dr. Eric Topol and his team at the Scripps Institute in La Jolla CA are launching a molecular autopsy study. DNA will be examined looking for clues to the unexpected death of otherwise healthy young people. Finding the genetic cause for the sudden cardiac death of a young person can protect their living first degree relatives. http://www.latimes.com/local/california/la-me-genome-sudden-death-20141210-story.html#page=1
December 10, 2014
This abstract from the journal Circulation clearly shows what stakeholders in the field of paediatric arrhythmia have long believed; the incidence of Sudden Cardiac Arrest amongst High School athletes is higher than previously thought. http://circ.ahajournals.org/content/130/Suppl_2/A19861.short The subtext to this article might be that Sudden Cardiac Arrest occurring during physical activity represents as little as one third of all cardiac arrest events involving teenagers. In the article below Dr. Andrew Krahn breaks down the numbers from 174 cases of Sudden Cardiac Arrest involving young people in Ontario in 2008. http://news.bioscholar.com/2012/10/hidden-disease-sports-sudden-cardiac-arrest.html
December 8, 2014
This article form University of Virginia Health Systems has great advice on using Christmas family time to learn more about your family history. Stories about family members that died suddenly or unexpectedly at an early age may hold the key to identifying Heart Arrhythmia diseases in living family members. http://www.dailyprogress.com/lifestyles/vital-signs-sharing-stories-of-family-health-history-can-pay/article_0e3a11c8-7b40-11e4-a80f-77020f046fb0.html
November 28, 2014
Sudden Cardiac Arrest is the leading cause of death amongst teenaged athletes. Across the US and the UK there is growing movement for Foundations to offer free or reduced cost ECG Heart Screenings. The simple, non-invasive, low cost test can often detect underlying heart disorders that would otherwise not be found and could result in cardiac arrest. http://www.wric.com/story/27482259/8news-investigates-sudden-cardiac-arrest-1-cause-of-teen-athlete-death
November 22, 2014
Phyllis and Darren Sudman lost their 3 month old son Simon to Long QT Syndrome in 2004. Simon’s Fund the foundation that Phyllis co-founded has provided free ECG Heart Screenings for over 10,000 young people looking for hidden heart health issues and over 100 have tested positive. http://www.timesherald.com/general-news/20141122/plymouth-resident-named-a-lorxe9al-paris-woman-of-worth